I joined the Luxembourg Parkinson Study about two years ago as a clinician-scientist. I split my time between the Luxembourg Institute of Health, where I'm part of the digital medicine team, and the Parkinson's Disease Research Clinic. My day-to-day work involves helping to design and run various clinical trials that we offer to our study participants. I also conduct my own research as part of my PhD studies at the University of Luxembourg. I focus on evaluating how current digital medical devices can be integrated into the daily lives of people with Parkinson's disease (e.g. how gait sensors can be used to evaluate the effectiveness of physiotherapy programmes).
We are also developing new digital technologies to improve care for people living with Parkinson's. Our team has started a new study to develop a digital application called the eDiary app. The main aim of the eDiary app is to help people with Parkinson's disease manage their daily activities - learn more about their own health, track important health information such as symptoms and physical status, and share this information with their healthcare team. We are currently inviting people with Parkinson's and their informal carers, such as family members and friends, to complete an online questionnaire - this can be done from the comfort of their own home. In the next stages, we will invite participants to interviews and group workshops to discuss and co-design the eDiary app.
We want to put people with Parkinson's at the centre of technology development. Their active involvement in the research can improve their understanding of the disease, but also ensure that the new digital tools meet their individual needs.
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